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We want this site to be a secure place where people can exchange info, opinions or just chat. We also ask for certain details on registration so that we can build a clearer picture of the who/how/where/when of those affected by CES. It also helps when organising new support groups or fund-raisers to be aware of member’s locations.
We are open to anyone who has a legitimate interest in Cauda Equina Syndrome and it is completely free to become a member.
Support Groups – Details of any support groups run with our NHS partners or independently will be posted on the site. You can get in touch via the site if you wish to attend or help us to organise a group in your area.
Online Groups – You can chat to people who understand CES and the affect it has on your life. Any member can create their own online group and invite people to join; these groups can be as private or public as you want them to be.
Events – Fundraising events can be organised and advertised through the site – if you have something planned, let us know!
Forum – Leave or answer questions left on our forum, whether it is about legal or financial matters, health and well-being or general advice and tips for coping with Cauda Equina Syndrome.
Charity Updates – You can get directly involved with the charity via the site, whether you would like to request literature, ask us a question, fund-raise or just keep up to date with how the charity is working to improve diagnosis, treatment and support of CES patients and their families.
Pages – Health care organisations, charities and businesses have their own pages, providing information and enabling members to contact them direct via this site.
Information is also available for all HCP’s – request literature; we have a range of leaflets, posters, Alert Awareness Cards, which highlight the CES ‘Red Flags’ and the causes of CES and are available for use in the NHS for free. Request a presentation; we are happy to attend training days and are practised in giving talks on our personal experiences with CES as well as offering practical advice from a patient perspective. For more information call 0845 6021993 or email firstname.lastname@example.org